Hi All - Some quick changes have taken place since the last post that I wanted to bring you up to speed on. Since transitioning to Hospice care a little over a week ago, Jason’s health has quickly deteriorated. As a result, this past Thursday he was moved into the Kline Hospice House, close to our home.
We feel blessed to have such an amazing facility and team to support Jas in these final stages in a way that honors what each of us in our family were most comfortable with. God worked in INCREDIBLE ways to make this happen with the help of our AMAZING Frederick Hospice Team! I'm to humbled to share this story of how it all came to be!
Originally our hospice nurse wasn’t supposed to visit Jas at our house until this past Friday (9/12), as she had just seen him that Tuesday and didn’t feel the need to come sooner. After I saw a significant decline, I called her Thursday am and asked if she could come that day instead. After she arrived, she quickly agreed that Jason’s decline was significant from earlier in the week and that it was time to get him transferred to the facility we all hoped he would be able to get into. We had done research for months and had decided that out of all our options, Kline Hospice House would be the best fit for his needs and had succumbed to the fact that we would need to pay a nightly room and board fee for Jas to stay there. It’s a beautiful 6 bed facility in the country specifically for individuals in their end of life season. Because it only has 6 beds, the first challenge to overcome was whether or not a bed would even be open and if there was a wait list. The good news here was there was a bed open with no wait list. Thank you Jesus!
So, our hospice nurse asked what my goal was on how quickly I wanted to get Jason there. I looked at her and said NOW if possible. I felt a huge sense of urgency to get him there while the kids were at school as it was becoming disturbing/scary for them to observe the decline and all the side effects that came with it. And within 15 minutes we were loading Jas into my car to head to Kline House.
After closing the car door, the hospice worker checked her phone and started crying when she read her text. She shared that she normally doesn’t get emotional with her patients, but that our case was different. (I think because she has kids our kids' ages it all hits close to home for her.) She had just received good news that hospice partnered with Kline Hospice House and made an appeal for our case with having young kids at home still and for the first time it was approved that Jason’s entire stay would now be free! HOLY MOLY! We had given up on that being a possibility after doing a couple months of research on our options in Frederick County. Yet when there seems to be no way, God still makes one!
She said, “Thank you for inspiring us to make a change in our community and for future families in similar situations that still have young kids at home.” And I was just in absolute AWE that here she was thanking me when I felt all the thanks deserved to go to her and the hospice team for advocating for us without us even knowing. After hearing Jas and I express our concerns about him being at home during this final stage with kids still in the house, the hospice team recognized that they had not been able to service families with kids at home to the level they now want to and were making a change starting with us. And you guys, this place is OUTSTANDING! It truly is a dream to be here. It’s so serene, a huge private room, gorgeous view out his window onto a huge back deck, in the country and only 6 patients max at one time. The nursing staff here is wonderful and so attentive. Everything we had hoped for him if we had to be in this season!
Upon checking in at the Kline House, I met the nurse and was signing some paperwork. One of the first things she said to me when I asked a question about what I still needed to keep track of and communicate with them was, ”At this point you can just be a wife. You don’t have to worry about anything else while he is here.” I started to cry because those were the EXACT words I had told Jas months ago that I hoped and prayed for when we got to this stage. And what Jas wanted for me also, understanding nursing is not my background nor a pressure on my shoulders that I like to have at this stage while still managing 2 kiddos. WOW, WOW, WOW! Total confirmation from the Lord that this gift of being here at the Kline House is from Him! And on top of it all, He took care of having it 100% covered financially! The Lord orchestrated ALL of this for Jas and our family and again it gives us a peace that passes all understanding in times like these!
Is Jas able to see visitors?
At this time we will no longer be accepting visitors. However, you are welcome to text me (Megan) at 808-634-5131 with a message or video that I could play or read to him in the short windows that he is now awake.
Helpful Links:
- 529 Education Fund (See codes in brochure above for each child): Ugift529.com
- Venmo ID: @Megan-Wiles-7
- Zelle ID: meganwiles7@gmail.com
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